June 2022

A 24-hour challenge, raising funds for seriously-ill kids and their families.

The Very Special Kids 24-Hour Challenge is back and better than ever in 2022 – Friday 3 June to Saturday 4 June! You can join the challenge and raise much-needed funds for children and young people with life-limiting conditions, and their families.

By challenging yourself, you can help seriously-ill kids improve their overall quality of life and build lasting memories with their family. 

Find out more


Teams - Onsite
Teams - DIY

Help Us Reach Our Goal

Goal Raised of


  • - Individuals
  • - Teams - Onsite
  • - Teams - DIY

Why you should get involved

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“Very Special Kids is the most amazing thing that’s ever happened to me"

- Steph, 13-years-old

Thirteen-year-old Steph has been in and out of hospital her whole life. At 10-weeks-old Steph was diagnosed with nystagmusThen after years of extensive nerve damage the family received news that she has mitochondrial disease, a debilitating and potentially fatal condition. 

Read Steph’s story
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“With how much Rich has given to the BFT network, our involvement to support Very Special Kids and the Burnet family is our way to give back.”

- Team BFT, Virtual Challenge Participants 2021

In 2021 the BFT team was inspired to join the DIY challenge because of the personal connection that BFT’s co-CEO, Richard Burnet, has with Very Special Kids. Rich’s two eldest children, Sebastian and Charlie, were diagnosed with a rare illness which has led to a long relationship between the Burnet family and Very Special Kids.

Read Team BFT’s Story